Who cares about health care records? Who cares to make them reasonably accessed when needed and unreasonably difficult to access when not.
As someone who has been put through a grilling with medical records being made accessible to media, I would love some contemplation by politicians on what policy matters.
Release of your medical records did not effect you. Why? You have someone pulling for you.You are smart. You obtained an education. You built a network of people who would pull for your strengths and not your weaknesses. You built credibility enough to elevate.
Who is Dan Patrick? He is such a good example of the above. An advocate on lowering taxes, 2nd amendment and promoting choice in where one goes to school. He was not defined by his rehab records released in media. Media released his medical history and he carried on. I am not saying I agree with his politics, yet he is an example of someone media tried to smear with medical records and he had very annoying people chasing him about in media.
I do not agree with the chasing of politicians (in any political party) about a
rehab they went to, or surgery they had in their 20's. Yet this freely
happens all of the time. It happened to him.
Ironically...
- I cannot actually get any medical status, privately, about my own brother. Amazing.
- I cannot consult with his social worker regarding his care.
- The media has more access to records than people who need to help others.
On my brother's healthcare:
If I could I would ask:
- Social worker, are you helping him heal? What steps are being taken?
- Does he actually KNOW someone tricked him into being aggravated at his group home? That they understood the law so well they knew it would get him placed in Terrell? Their motives unknown, yet the party is partially identifiable.
- Social worker, can I give you some perspective? He dealt with grief and guilt from age 5 to 30. Here are some examples.
- What have you done, social worker, to help him alleviate and let go of that grief and guilt?
- Social worker are you a pill farm with medication or are you giving him coaching and counseling to live?
I would have loved to try to undo years of damage my sister did telling him he did not need help because we all needed help.
We are caught in the most vicious cycle in Texas of them all. Health care for our trauma. Our brain is an organ, and if you mistreat it, feed it the wrong inputs, the wrong outputs are produced. Our brain requires health care.
My brother should have had someone who cared, someone he could trust 22 years ago now. A person whom I could speak with, who knows I love my brother. A person he could speak with.
Who was the healthy person that was going to keep his trust, and teach him to forgive himself and others? Tell him he is loved. He was loved. That he had already spent years beating himself up for his "misdeeds" "guilt" and he was in a vicious cycle?
No one.
I set my father up with Dan Deshazo of MHMR. I sought out friends and asked- "who can help us get out of this vicious cycle and some help for Tim?" "I need an independent party to get in there and help him". This is how I obtained Dan's name. The hope was that someone independent could help Tim get help and ensure it was sound treatment planning for him. Someone free of familial mistrust and conflict.
What happened with that while I went my separate way to focus on my job and own personal development? Did my father even engage him after the first time?
Everything died on the vine in 2006 when my mother passed away. Every bit of someone CARING that Tim will have some rehabilitation and find some quality /joy in his life.
I have seen no status reports, no inquiries (how are you doing in this), no updates. No updates such as: here is our goal and treatment plan for Tim's psychological well being. I have seen NOTHING.
My father operating out of literal FEAR I would mess up some game plan for him to get skilled care, told us to never discuss him.
I cared. I cannot help him because I am forced by law to yield to parents and guardians unless I am financially wealthy enough to defy the law.
I consulted a lawyer. Do you want guardianship they asked. This like a broken record.
Does my brother want the psychological impact of someone he needed to resolve his guilt grief with having financial power over him? That is a more fair question. The answer is no most likely. I want my brother to have held my hand and walked WITH me through counseling our trauma and fixing our wounds.
I wanted him to HEAL.
I want to know someone is caring for him each and every day and that he is not locked up with the man who tricked him to work the Texas laws. (harm to self or others). It was a trick to get him out of the group housing he was in.
I am very unclear WHY he was being removed from group housing this way. I see Ram Garg was picking up ownership of the complex.
The man (anonymous) who did it communicated with me on a mobile game the ENTIRE TIME he did tricks and ploys used against Tim. Why the man decided to remove Tim from group housing is not understood. He refuses to ID himself in a mobile game hosted by My.Games titled "Guild of Heroes". He is (anonymous), he is criminal, he is terrible at communication, and he is senseless.
I want to see the quality of care in my brother's treatment plan and I want to know someone CARES is there for him every minute until he takes his last breath on this planet - whether that is gaining some semblance of independence or not. It is very unclear if he can I have such low visibility into his well being.
My brother has been mistreated for a very long time. It pains me so deeply.
What are the rules here? Some that need to change I reckon. Instead of vigilantes accessing medical history that is irrelevant to skewer people in media, when is private negotiation possible for people who need to be part of the solution to a problem?
We really need a deep introspection on medical records management in this country and how we treat one another.
As a side note:
I have had some nut chasing me about media assessments, instead of helping solve actual problems. In fact they made them worse.
I'm simply here waiting for media exposure on whatever flaws I may have had or he has presently. Why?
It is amazing that someone purporting to do "media assessments" is able to collect more information about an individual's medical status than an actual family needing to help a sibling in some way.
